A letter to those who have gotten or will get in this Momma Bear’s way. 

Dear [ ]:
I’m sorry.
I’m sorry to have ruined your day, angered you, or caused your supervisor to watch you closely. I know what bad days, frustration, and job pressures feel like. It wasn’t my intention to cause you problems. It may not feel like that to you, but it’s true.
I know that –when you aren’t busy being the person I had to get unpleasant and sassy with –you’re probably a very nice person. I’m sure that your family loves you, friends think you’re wonderful, and you’re an active church member. If circumstances were different, we might be friends.
But the great person whom I’m sure you are intersected with a road I’m traveling to meet the needs of my special needs child. To put it simply – you got in my way. In some way significant to my child, you failed to do your job. Do I think that makes you evil? No, I think that makes you human. But the issue isn’t how I feel about you. The issue is a vulnerable little boy who cannot speak for himself – my vulnerable little boy.
There are a lot of reasons why you might fail to do right by my child. You may be overworked. You may not have enough resources. Your boss may be a jerk—or clueless. You might not have the knowledge or time to do what is being asked of you. Most likely, you are simply a part of a system that has been broken for so long no one knows what it is supposed to look like when it works. Most likely, you probably already know that – but fear of rocking the boat caused you to go along with what you knew to be wrong. You may feel helpless about that and wish it were different. I’ll let you in on a secret – I feel the same way.
But feelings and wishes – over truth and action- are luxuries I don’t have. I can’t blame it on the system, lack of money, or others and go about my day. You see, this child is mine. And you and I know all too well who will step forward to advocate for my child if I don’t – no one. Not really. They’ll think he’s adorable, sign him up for an hour of therapy or so a week, and set goals for him low enough for him to achieve in a year. They’ll finish his FSP/IEP in 15 minutes and tell themselves they’ve done their jobs.
But it won’t keep them up at night. It won’t drive them to learn and do more. They won’t feel a sense of panic as precious time is lost. It won’t incite their indignation. It won’t be their child, so…
It won’t be personal.
But his well-being is my purpose for being here. Having made the decision to have and raise a child, he shot straight to the top of my priority list – even if he isn’t at the top of yours or the system you work for. If you fail to make a call, provide a service, determine and meet his needs, allow him to be under-challenged, ignore his FSP/IEP, traumatize him in some way, or do him any kind of educational, medical or moral injustice – then it’s my job to be there, make a scene, draw attention to it, and make it right.
So, unfortunately, that’s where your path and my path have crossed. I’m sympathetic to whatever caused you to be here. But my job is incompatible with looking the other way while you don’t do yours. No matter what the reason. It’s just that black and white – even if it isn’t completely your fault.
This isn’t going to change anything. I’m still going to be there. I’ll still be watching closely. I’ll be polite, but I will be ‘that parent’. The parent who writes the letters, makes the phone calls, requests the records, researches the issue, analyzes the data, knows the law, and makes it her mission to know more about my child’s disability and issues than you or anyone you work with. Which means there may come a time when his needs and rights are in conflict with your convenience, budget, or the status quo. Again, I’m sorry about that.
But I want you to know– it’s not personal.

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